Learn about the UNCRPD

The presentation below is an opportunity to learn about the CRPD and what it means for you. We also explain about how Ireland reports to the UN and how you can become involved in this process. This video and the webinar where the content was originally presented are part of a process to create a Shadow Report to the UN on CRPD by the Disabled Persons Coalition (DPO Coalition) of which The National Platform is a member.
Improving Access to Paid Employment for People with Intellectual Disability

Improving Access to Paid Employment for People with Intellectual Disability

In September 2019, the National Platform of Self Advocates was successful in engaging a research grant from The Irish Human Rights and Equality Commission (IHREC) to examine the barriers and potential answers to increasing the participation and retention of people with intellectual disabilities in employment.

Additional information about IHREC is available at www.ihrec.ie.

In order to ensure that employers are included in our recommendations to addressing the problem of poor inclusion strategies of people with intellectual disabilities in employment the National Platform is interested in learning how employers in various sectors feel they can successfully recruit and retain employees with intellectual disabilities. Your participation would add greatly to the success of this effort to identify successful practices and share them with other employers and policy makers. To this end we would be grateful if you would complete our survey which will take 5 minutes.
The link to our survey is:
https://www.surveymonkey.com/r/5T86QBV

Individually identifiable data will be accessible only to the authorised researcher. Individual responses will be analysed only in combination with other responses collected nationwide. The responses will not be linked with your organisation or with your name.
If you have any questions or concerns about participating in this research you may call:

Supervisory Research Analyst, The National Platform of Self Advocates Research Team – 091 55 75 95

Thank you for your assistance in this important research.

Dermot Lowndes in the Irish Times

Dermot Lowndes in the Irish Times

Thousands will not be able to vote on Saturday, expert warns

‘There is a complete lack of awareness about the barriers thousands of people face’
Thu, Feb 6, 2020, 13:24 Updated: Thu, Feb 6, 2020, 13:25
Kitty Holland Social Affairs Correspondent

Shelly Gaynor, from Swords and Dermot Lowndes, from Fairview, in the IHREC offices, speaking about the barriers facing people with disabilities when going to vote. Photograph: Dara Mac Dónaill / The Irish Times

Thousands of people will not vote on Saturday because they cannot – whether due to disability, illiteracy, infirmity or because they have never been shown how to, a voter inclusion expert warns.

Bernie Bradley, social inclusion officer with Monaghan County Council and member of the disability advisory council with the Irish Human Rights and Equality Commission, says there is a “huge hidden cohort of people” not voting because they can’t access their right.

“Not voting is seen by many commentators as apathy but there is a complete lack of awareness about the barriers thousands of people face.”

There are people with mobility issues who need assistance getting to the polling station; wheelchair users who might have access to the polling station but not the room where the voting is taking place because the door is too narrow; visually impaired people who can’t see the type on a ballot paper and people who struggle to hold a pencil.

“Low literacy is a hugely private issue,” she says, though it can be widespread, especially among older people. She believes many thousands of people with intellectual disabilities do not vote because they have not been supported to register to vote.

It is the State’s responsibility to uphold people’s right to vote, she adds.
Polling station staff, or a “polling companion”(friend or family member over 16) can help a person to vote, including helping them fill in the ballot paper.
“All polling station staff should offer everyone help regardless of whether they look as if they need it,” says Ms Bradley, as some people may not know to ask for help.

She cites one elderly man who voted all his life but developed a hand tremor. He continued going to the polling station every election hoping he could steady his hand to fill in the ballot, but couldn’t. Rather than ask for help he put a blank ballot paper in the box for several years until he was, during a recent election, offered help filling it in.

“A big publicity push is needed to tell people they will be helped at the polling station if they need it. If the process is accessible more people will engage.”
All polling stations should be wheelchair accessible; should prominently display a large poster-size version of the constituency’s ballot paper for visually impaired people to use as a guide; tactile ballot-papers for the visually impaired, a low polling booth for wheelchair users, extra seating for frail or tired people to rest, and a ballot-box accessible to wheelchair users.

Voters who need assistance can avail of companion voting or they may seek the assistance of the presiding officer, a spokesman for the Department of Housing and Local Government said.

A group established in 2018 by Minister of State for Local Government, John Phelan was “working on improving accessibility to polling stations for voters with physical disabilities, particularly wheelchair users, with the goal of all polling stations being fully accessible as soon as possible”.

Challenges
Shelly Gaynor (40), living in Swords, Co Dublin, has cerebral palsy and uses a wheelchair. She has been registered to vote since she was 18 and has always exercised her right, though it has been challenging sometimes.

“Electronic voting though was a disaster for me,” she says. In the 2002 general election e-voting was piloted in three constituencies including hers – Dublin North.

“I had to get two big men top lift the machine down from the table so I could reach the button. They just didn’t think about wheelchairs when they were designing it.”
She is lucky she says to have a personal assistant, with 12 hours’ cover a day. “They are very hard to get. That is one of the major issues for people who want to vote but don’t have a PA to get them to the polling station. Then when they do they may not [be able to] physically access the booth.

“Transport is an issue. In Dublin it’s not too bad but I can only imagine what it’s like in some parts of the country. To even access to a bus once it arrives, can be a nightmare.”

She does not believe all local authorities are attuned to the needs of people with disabilities when it comes to voting in elections and referendums.
“If you physically cannot go out to vote; if you haven’t been told about the postal vote; if you can’t get into the room where the polling booths are, you can’t vote.”
Dermot Lowndes (61) too has been registered to vote since he was 18 though “missed out on voting” in the European and local elections last year because he had moved constituency and hadn’t realised he needed to change his vote.
He has a mild disability and lives in his own accommodation provided by St Michael’s House, in Fairview, Dublin.

“There are lots of rights for people with disabilities but a lot of people with disabilities don’t know their rights. They mightn’t understand. You need easy-read information. Candidates should put out their leaflets in “easy-read” [format].”

Asked about the issues he would like addressed, he says: “More housing and more jobs for people with a disability”. He pays rent and works one day a week. “If you want to go out for the pictures or a few pints, it’s expensive. Money can be very tight.”

Fiona Walsh

Dear Minister McGrath,

I am writing to you to raise awareness of the importance of funding Disabled Peoples Organisations (DPO’s) and especially regarding the position of the National Platform of Self Advocates (http://hsv.digitalclare.com/) which has stated it cannot continue any longer after January 2020 without funding. Announced on International Day of People with Disabilities when buildings around the country went *going purple* to support disability. ( http://hsv.digitalclare.com/closure-national-platform-self-advocates/ ).

I feel also you will appreciate that it is crucial that this work continues from your own experience as a parent.

As you are aware Equality and non-Discrimination are core principles which underpin the CRPD. The full and active participation of PWD’s, on an equal basis with others, the ‘nothing about us without us’ the unofficial motto of the Convention reminds us why DOP’s are crucial. As someone advocating for human rights in the mental health and intellectual disability arenas, I have met various members of the platform advocating, got to know them and indeed participated giving training input as the platform did to various professionals and national advocacy service staff at the Centre for Disability Law and Policy. I am currently studying at the Centre for Disability Law and Policy for an LLM in comparative disability law and policy and both myself and fellow students are frequently reminded of the importance of DPO’s and the work and advocacy of the platform.

The CRPD committee issued a General Comment Number 7 on Article 4.3 and 33.3 of the CRPD in respect of the participation of persons with disabilities in the implementation and monitoring of the Convention (Adopted 21 September 2018).

https://www.ohchr.org/EN/HRBodies/CRPD/Pages/GC.aspx

It clearly clarifies and sets out the States obligations in relation to DPOS’s.

These obligations are clearly not being met in relation to the National Platform of Self Advocates.

Please see also the report on research commissioned by IHREC around the monitoring and implementation of UNCRPD. https://www.ihrec.ie/app/uploads/2016/05/Establishing-a-Monitoring-Framework-CRPD-WEB-151020119.pdf

I would be very grateful if you could arrange to liaise and possibly meet urgently with representatives of the platform to address the lack of funding issue for National Platform of Self Advocates to continue after January. The broader issue of how the State is going to go beyond the precarious charity/philanthropy model and ensure long term funding for DOP’s to uphold its international human rights obligations also needs to be addressed.

Yours sincerely,

Fiona Walsh

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Update on the Work of The National Platform October 2019

Update on the Work of The National Platform October 2019

The National Platform of Self Advocates is run by people with intellectual disabilities for people with intellectual disabilities. We are a disability persons organisation, and the only DPO for people with intellectual disabilities in Ireland.

National Platform Activities

In the last 4 months we have been involved in and contributed to many consultations and policy submissions as well as delivering presentations at conferences.

Here is a lst of some of the work we have been involved in:

  • Member of IHREC’s Disability Advisory Committee, advising IHREC on the monitoring of the governments implementation of the UNCRPD
  • Member of the Board of Inclusion Ireland
  • Consultants to the Office of Minister Finian McGrath, Minister of State for Disability Issues
  • Launch of Stories of Social inclusion; Trinity College, NDA and Inclusion Ireland
  • Falling Through the Cracks; Senator Collette Kelleher
  • Making Rights Real for Prisoners’ with Disabilities Stakeholders Group; Irish Prisoner Reform Trust and CDLP
  • UNCRPD Roundtable Event; National Disability Authority
  • 11th International Disability Law Summer School Galway; CDLP
  • De-institutionalisation and the implementation of CRPD Article 19: Independent Living and being included in the community; IHREC
  • “Because we’re all Human. Means we’re all equal”; IHREC Disability Public Awareness Campaign
  • Review of Accessible Documents; Housing Agency
  • Employment and People with Intellectual Disabilities; National Platform of Self Advocates national meeting
  • Research Study on Costs of Disability; Indecon on behalf of the Department of Employment Affairs and Social Protection
  • Relationships and Sexuality for People with Intellectual Disabilities; Trinity College
  • Public Consultation on potential changes to the licence conditions for regular public bus passenger services with regard to accessibility; National Transport Authority
  • Consultation on Decent Work National Indicators, ESRI
  • Consultation on Inclusion and Diversity, Public Appointments Service

Upcoming Events

We have been invited to present at conferences being run by IHREC and the NDA during October.

Achieving Equality at Work: Reasonable Accommodation in Practice; IHREC
The UN Convention on the Rights of Persons with Disabilities: Past Lessons and Future Aspirations; NDA Annual Conference

We are very happy that our work has been recognised by government bodies and so many organisations nationally.

Funding Crisis

Currently the National Platform of Self Advocates have no source of funding and we are in financial crisis. We are hoping that the government will find a way to core fund our organisation. This would help to fulfill its international obligation under the UNCRPD to support the inclusion of people with intellectual disabilities in decision making around legislation and policy making.

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