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‘There is a complete lack of awareness about the barriers thousands of people face’
Thu, Feb 6, 2020, 13:24 Updated: Thu, Feb 6, 2020, 13:25
Kitty Holland Social Affairs Correspondent
Shelly Gaynor, from Swords and Dermot Lowndes, from Fairview, in the IHREC offices, speaking about the barriers facing people with disabilities when going to vote. Photograph: Dara Mac Dónaill / The Irish Times
Thousands of people will not vote on Saturday because they cannot – whether due to disability, illiteracy, infirmity or because they have never been shown how to, a voter inclusion expert warns.
Bernie Bradley, social inclusion officer with Monaghan County Council and member of the disability advisory council with the Irish Human Rights and Equality Commission, says there is a “huge hidden cohort of people” not voting because they can’t access their right.
“Not voting is seen by many commentators as apathy but there is a complete lack of awareness about the barriers thousands of people face.”
There are people with mobility issues who need assistance getting to the polling station; wheelchair users who might have access to the polling station but not the room where the voting is taking place because the door is too narrow; visually impaired people who can’t see the type on a ballot paper and people who struggle to hold a pencil.
“Low literacy is a hugely private issue,” she says, though it can be widespread, especially among older people. She believes many thousands of people with intellectual disabilities do not vote because they have not been supported to register to vote.
It is the State’s responsibility to uphold people’s right to vote, she adds.
Polling station staff, or a “polling companion”(friend or family member over 16) can help a person to vote, including helping them fill in the ballot paper.
“All polling station staff should offer everyone help regardless of whether they look as if they need it,” says Ms Bradley, as some people may not know to ask for help.
She cites one elderly man who voted all his life but developed a hand tremor. He continued going to the polling station every election hoping he could steady his hand to fill in the ballot, but couldn’t. Rather than ask for help he put a blank ballot paper in the box for several years until he was, during a recent election, offered help filling it in.
“A big publicity push is needed to tell people they will be helped at the polling station if they need it. If the process is accessible more people will engage.”
All polling stations should be wheelchair accessible; should prominently display a large poster-size version of the constituency’s ballot paper for visually impaired people to use as a guide; tactile ballot-papers for the visually impaired, a low polling booth for wheelchair users, extra seating for frail or tired people to rest, and a ballot-box accessible to wheelchair users.
Voters who need assistance can avail of companion voting or they may seek the assistance of the presiding officer, a spokesman for the Department of Housing and Local Government said.
A group established in 2018 by Minister of State for Local Government, John Phelan was “working on improving accessibility to polling stations for voters with physical disabilities, particularly wheelchair users, with the goal of all polling stations being fully accessible as soon as possible”.
Challenges
Shelly Gaynor (40), living in Swords, Co Dublin, has cerebral palsy and uses a wheelchair. She has been registered to vote since she was 18 and has always exercised her right, though it has been challenging sometimes.
“Electronic voting though was a disaster for me,” she says. In the 2002 general election e-voting was piloted in three constituencies including hers – Dublin North.
“I had to get two big men top lift the machine down from the table so I could reach the button. They just didn’t think about wheelchairs when they were designing it.”
She is lucky she says to have a personal assistant, with 12 hours’ cover a day. “They are very hard to get. That is one of the major issues for people who want to vote but don’t have a PA to get them to the polling station. Then when they do they may not [be able to] physically access the booth.
“Transport is an issue. In Dublin it’s not too bad but I can only imagine what it’s like in some parts of the country. To even access to a bus once it arrives, can be a nightmare.”
She does not believe all local authorities are attuned to the needs of people with disabilities when it comes to voting in elections and referendums.
“If you physically cannot go out to vote; if you haven’t been told about the postal vote; if you can’t get into the room where the polling booths are, you can’t vote.”
Dermot Lowndes (61) too has been registered to vote since he was 18 though “missed out on voting” in the European and local elections last year because he had moved constituency and hadn’t realised he needed to change his vote.
He has a mild disability and lives in his own accommodation provided by St Michael’s House, in Fairview, Dublin.
“There are lots of rights for people with disabilities but a lot of people with disabilities don’t know their rights. They mightn’t understand. You need easy-read information. Candidates should put out their leaflets in “easy-read” [format].”
Asked about the issues he would like addressed, he says: “More housing and more jobs for people with a disability”. He pays rent and works one day a week. “If you want to go out for the pictures or a few pints, it’s expensive. Money can be very tight.”
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Dear Minister Flanagan,
The closure of the National Platform of Self Advocates in January 2020 is simply an outrage, due to alleged funding concerns; which is run by individuals with intellectual disabilities for individuals with intellectual disabilities.
For those directly and indirectly involved, this must be prevented, as often disability services are one of the first in a line of savage cut-backs. Yet, for true inclusion to determine life choices, disabled persons must have full, meaningful participation in all areas of their lives, not as mere bystanders, jumping to the tune of non-disabled people with their outmoded policies, that do not come close to the real, everyday concerns.
I have a son, Ryan, who has autism, ADHD and epilepsy and in two and a half years time, he too will be an adult with intellectual disabilities. We need to give, rather than take away.
I presently work for Ability West with service users who have intellectual disabilities and physical disabilities, etc. Believe me, all of these people are human beings, and thrive on experiencing laughter, embarrassing times and taking reasonable risks, together with all of the other things that make up life.
I am also a current student at St. Angela’s College, part of NUI, Galway, studying for a Masters in Disability Studies, Year 1 Certificate.
I witness disability on a daily basis, from a personal, work and educational lens, while structured, environmental and attitudinal barriers are still alive and kicking.
Please spread happiness and security for those very people with intellectual disabilities, while reversing this closure for good. The very last thing disabled people want is to have no service whatsoever, coupled with an ever diminishing voice.
No experience is richer than that which derives from the lived experience of disabled persons.
Please address this concern with the utmost urgency.
Kind Regards
Tony Gapper
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Dear Minister Flanagan,
I am writing in relation to the recent announcement on the day referred to by social model of disability advocates and activists as International Day of Disabled People that the National Platform of Self Advocates “will be closing down [its] operations from January due to an absence of funding or suitable supports for [its] work”. In short Minister Flanagan, I believe that there is no justifiable reason why the required funding cannot be provided directly through the Department of Justice and Equality to the National Platform of Self Advocates.
At the time of writing, it is a fact that it is now over a decade ago since I graduated in 2008 with a Higher Certificate in Arts in Advocacy Studies based on a social model of disability foundation and was awarded a Citizen’s Information Board Medal as the best overall student in the graduating class of that year. It is also a fact that at the end of 2008 I was “discharged from the care of medical model of disability based mental health services” funded by Irish taxpayers, having spent the fifteen previous years of my life under that “care” on the basis of claims made to me by “mental health professionals” that I “was suffering from a lifelong and enduring mental illness”. The fact also is that it is only now in 2019 in Ireland that the opportunity has become available to me to further my studies of social model of disability principles to postgraduate and master’s level as a Disability Studies student of St Angela’s College Sligo – NUI Galway.
Aside from fifteen years of experience in self advocacy as an Irish Mental Health Service system survivor, I also have six years of survival experience of fulltime employment from 2010 to 2016 as a peer advocate by what I believe should be, but which I believe is currently not, a disabled persons organisation being operated according to the principles of the social model of disability.
I put it to you Minister Flanagan that on 3rd December last you received a copy of an email from me containing the following statement:
Dear President Higgins,
On 22nd November 2019, Dr. Terry Lynch, physician, psychotherapist, mental health educator, best-selling mental health author, provider of a recovery-oriented mental health service, and, Member of A Vision for Change Expert Group on Mental Health Policy (2003-6), Member of A Vision for Change Independent Monitoring Group (2006-9), Member of A Vision for Change Second Independent Monitoring Group (2009-12), and Member of HSE Expert Advisory Group On Mental Health (2006-8) stated that:
Leo Varadkar and Simon Harris have IGNORED documents I sent them both – by registered post, 12 months ago now – comprising of a detailed letter from me, personal contributions from over 30 people, and the signatures of over 200 people.
The purpose of this document was to formally inform Messrs Varadkar and Harris that they are currently presiding over a mental health system that is every bit as scandalous as the outrages of the past – e.g. Magdalen Laundries, Tuam babies, clerical sex abuse, etc – which politicians have been publicly stating must never happen again.
Why President Higgins can pharmaceutical manufacturers and their representatives have their voices heard with such apparent ease while the voice of Dr. Lynch and those of Mental Health Service Survivors the length and breadth of the country are being so blatantly ignored? Pharmaceutical companies do not speak for us! Nor do See Change, Green Ribbon’s, Aware, Shine, Mental Health Reform, Mental Health Ireland, The Mental Health Commission, The Mental Health Engagement and Recovery Office, or, Irish Advocacy Network speak for us!
I call on you President Higgins to meet with and speak with Dr. Lynch and with those Mental Health Service Survivors who know only too well the fraud and the abuse that has occurred and is still occurring throughout our nation.
Richard Patterson,
County Leitrim.
I also put it to you Minister Flanagan that during my six-year career as a peer advocate I witnessed situations where people were detained in the “care” of Mental Health Services funded by the Irish state who were labelled by “Health Professionals” committed to the ideologies of the medical model of disability as “People with Intellectual Disabilities”. J.H., as referred to in the 2007 High Court Judgement [2007] IEHC 7 – 2006 1719 SS – 02/06/2007, H. -v- Russell & ors, I am a witness to the fact was one such person. While almost three years had elapsed after this judgement before my recruitment as a trainee peer advocate, J.H. had been detained by the “mental health services” all of that time. Although I am glad to have played a minor personal role in securing his eventual release, I believe that J.H. should never have had his liberty removed from him by his state as it was for so many years. I echo the words of Dr. Terry Lynch as previously quoted in stating that I believe that the manner in which J.H. was treated was “every bit as scandalous as the outrages of the past – e.g. Magdalen Laundries, Tuam babies, clerical sex abuse, etc – which politicians have been publicly stating must never happen again.”. The kind of situation which J.H. was forced to endure is I believe however, neither unique nor confined to historical Irish contexts.
I reiterate Minister Flanagan that I believe that there is no reason why the Department of Justice and Equality should not directly provide the funding required for the work of the National Platform of Self Advocates to continue. This is a matter of upholding citizen’s rights and not of charity! I urge you to take immediate action to make such funding a reality, and I invite all fellow psychiatric system survivors and their allies who feel at liberty enough to do so, to join me in making this call to you.
Richard Patterson,
County Leitrim.
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